NF için aşağıdaki kaynaklardan yararlanılabilir:
• Hacettepe Üniversitesi Çocuk Nörolojisi Derneği
cnsoru@hacettepe.edu.tr• The National Neurofibromatosis Foundation
Adres:
National NF Foundation
95 Pine Street, 16th Floor
New York, N.Y. 10005
Tel: (001-212) 344-NNFF(6633)
Faks: (001-212) 747-0004
E-posta: NNFF@nf.org
• The NF2 Review
c/o the House Ear Institute
2100 West Third St., Second Floor, Los Angeles, CA 90057
(213) 483-4431
(213 484-2642
• The Acoustic Neuroma Association
PO Box 12402, Atlanta, GA 30355
(404) 237-8023
• The Alliance of Genetic Support Groups
35 Wisconsin Circle, Suite 440, Chevy Chase, MD 20815
(301) 652-5553
alliance@capaccess.org
• NF2 Sharing Network
10074 Cabachon Court, Ellicott City, MD 21042
(410) 461-5213 TDD
• John Lester's collection of poetry about NF